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Cystic fibrosis: NICE issues new quality standard

The National Institute for Health and Care Excellence (NICE) has issued a new quality standard which focuses on diagnosis and management of cystic fibrosis in infants, children, young people and adults with respect to high-quality care in priority areas for improvement.

The key goals of the quality standard are:

  • Improved lung function.
  • Reduced incidence and prevalence of infection.
  • Improved health-related QoL.
  • Improved survival rates.

The quality standard covers the following 4 recommendations:

  • A specialist multidisciplinary team should annually review all evaluations undertaken in the past year by individuals with cystic fibrosis
  • Cystic fibrosis patients when admitted to a hospital as an inpatient should be provided individual rooms with en-suite facilities.
  • Cystic fibrosis patients with chronic Pseudomonas aeruginosa infection should receive sustained therapy with an inhaled antibiotic.
  • Cystic fibrosis patients with clinical evidence of lung disease should be prescribed rhDNase as the primary choice of mucoactive agent.

Health professionals should also take into consideration quality standards on 'End of life care for infants, children and young people', 'Transition from children's to adults' services', 'Antimicrobial stewardship', 'Medicines optimisation', 'Healthcare-associated infections', 'Infection prevention and control', and 'End of life care for adults' when providing services for cystic fibrosis.


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