Researchers are facing a number of challenges in sharing their work since the introduction of the European Union (EU) General Data Protection Regulation (GDPR) and experts are now calling for greater efforts to support them in sharing research.
At this week’s annual conference of the European Society of Human Genetics, researchers presented a new study exploring the practical challenges in depositing individual level genetic data in research repositories. These include GDPR's requirement for data processing to be limited to what is necessary to fulfil a study's objectives and that participants in research studies have the right to withdraw consent for the further use of their data. The authors also highlighted how researchers currently may face problems submitting their work to some journals due to legal restrictions preventing them from sharing individual-level genetic data in the journals' repositories.
They suggested funding bodies and journals should adapt their requirements to meet GDPR and highlighted the need for the urgent establishment of GDPR-compliant research repositories.
“The framework of research data deposition, if not adapted, could lead to the unwanted consequence of researchers complying with the law facing difficulties publishing their work, irrespective of its scientific qualities,” they said.