The 2019 IBD Standards are a framework of 59 statements grouped around the patient journey, covering referral pathways, access to IBD nurses, psychological support, shared care, empowerment and self-management. There is a strong emphasis on collaboration between patients and healthcare teams, better communication and a number of specific target measures, particularly in relation to waiting times to investigation and treatment initiation.
The standards are underpinned by survey responses from 700 patients and 151 healthcare professionals, and three rounds of modified e-Delphi consensus involving key IBD stakeholders including the British Society of Gastroenterology and the Royal College of General Practitioners.
Aligned with the 2019 BSG IBD Guidelines and the 2018 Association of Coloproctology of Great Britain and Ireland IBD surgical guidelines, the standards are accompanied by an IBD Benchmarking Tool which allows services to identify areas for improvement. The tool includes the new IBD Patient Survey, which will allow services to understand the patient’s perspective, providing a unique way to measure quality of care while promoting partnership.