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Clinical Summary

The impact of pulmonary hypertension: UK patients' perspective

Takeaway

  • Despite advances in treatments, patients with pulmonary hypertension (PH) in the UK continue to experience delays in diagnosis and are burdened with emotional and financial impacts of the disease.

Why this matters

  • To improve patient care and disease management, it is crucial to have a better understanding of the impact of PH and its treatment from the perspective of patients.

Study design

  • Descriptive cross-sectional survey of patients with PH in the UK.
  • Data on time to diagnosis, quality of life (QoL), financial impact and specialist treatment were collected using questionnaires.
  • Funding: None.

Key results

  • 60% of patients reported that PH had a 'major impact' on their QoL and 45% stated significant improvement in their QoL with treatment and management.
  • 40% of patients reported seeing >4 doctors before they were diagnosed with PH.
  • 63% of patients said that PH had some sort of impact on their financial situation; those working (part-time and full-time) experienced the greatest financial burden.
  • Patients reported overall positive experiences of receiving treatment in specialist centres.

Limitations

  • Being a descriptive study, no further statistical analysis was conducted on associations between the data.

References


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