Treatment goals are not always health-related for patients with COPD, research led by the University of Cambridge shows.
For the study, 40 patients took part in one-to-one discussions to identify what was working well, not working well and what was important for the future in terms of their COPD care. The responses were analysed in two one-day co-production workshops involving patients with COPD, carers and health care professionals.
They found the six highest priority themes around what is not working well were: 'I don't think the right hand knows what the left hand is doing', 'I can't get appointments when I want them', 'I'm not treated as a person', 'I can't do what I want to do', 'I'm anxious and depressed' and 'I can't eat well'.
The solutions generated at the workshops suggested quick wins could be had from lower effort interventions that impact patients’ ability to live well with COPD and to have effective relationships with health care providers.
“What mattered to patients encompassed meaning, purpose and relationships beyond immediate medical needs and underlines the need for patient-centred holistic approaches to COPD care and support,” the authors say.
The research is published in NPJ Primary Care Respiratory Medicine.